Additional Resources

I have come across many resources that I found to be useful and am happy to share.  You can use these resources as a starting point.  I am not endorsing a particular product or service but am simply sharing what I learned.

Preterm Birth

Note:  My oldest daughter was born at just over 24 weeks gestation.  Any baby born at less than 37 weeks of gestation is technically considered born premature.  Here is a site that answers some basic questions on this topic.

Neonatal Intensive Care Unit (NICU) 

Note:  This is the NICU where our daughter spent her first few months of life so this is where I started.

Cerebral Palsy

Note:  Our daughter was diagnosed with Cerebral Palsy early on and this is one of the resources that I used to understand more about this disorder and to help understand what the impact on Julia would be both in the short term as well as the long term.

Deaf and Hard of Hearing

Note:  There is so much information out there about deaf and hard of hearing but the National Association for the Deaf is a great place to start.

Individuals with Disabilities Education Act

Note:  The US Department of Education has information about the law, pending regulations and available resources.  Your state education agency will also have information related to how IDEA is implemented in your state

Americans with Disabilities Act

Note:  A good source for information about the law, resources available and avenues of enforcement

Deaf Education

Note:  Again, lots of information is available on this topic but since Gallaudet is the nation’s only university specifically dedicated to educating the deaf and hard of hearing, it is a good place to start.

Cochlear Implants

Note:  This is where our daughter was implanted and they are one of the leaders in the field on cochlear implants and rehabilitation.